A lot has happened since we had the chance to write a post last. Mae did round the corner and is doing much, much better. They took her central line out of her belly button and put another peripheral IV in her foot, but just for her antibiotics. The rest of the time they capped it and had her off the IV so she had one less wire that she was hooked up to.
Her time on the new air machine, the Optiflow, was pretty short lived. She was on it for that night and did really well. So that morning she was already on room air at 21% oxygen and they turned down the pressure from 3 liters to 2. She was on that for about 2 hours and doing perfect, so they turned her down to 1 liter of pressure. About an hour later, they decided she was doing so well that the doctor decided to take her off the Optiflow machine and just put her on a bubbler off the wall air. But it took a while to get her hooked up while she was off the Optiflow, and her stats didn't dip at all, so instead of being on another nasal cannula and one more tube, she was taken off the air completely. She has been great with the breathing ever since!
Once she was off the air, we got to hold her a lot more, so we got some good quality snuggle time with our little girl. She got her last dose of antibiotics Saturday morning at 10, so her IV came out. At that point the only wires or tubes were her feeding tube, her pulse ox monitor, and her breathing monitors.
I came home Saturday afternoon so I could preach at church on Sunday, and Beth stayed at the hospital. When I left, they said that her breathing issues were all taken care of and her eating was the only thing left. They said she needed to be able to take all her feedings orally and gain weight. Throughout the day on Friday and Saturday, she had a few feedings where she did really well, but also had a few she had to take through the feeding tube because she just couldn't seem to wake up to eat a few times. Part of the problem is they wanted her to be acting hungry before she could even try to eat orally, so if she wasn't waking up before hand, they just fed her with her tube.
But throughout the night Saturday night was a different story. Beth texted me early this morning (on Sunday) and said that she had taken all her feedings orally throughout the night and had done really well. They took her feeding tube out this morning and they just finished her car seat test to make sure her stats would stay up while she was in it. She did awesome!
They just weighed her, and she had gained weight, which means we get to take our little girl home tonight! Beth is about to feed her and then we will finish up the paperwork to go home. God is good!!!
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